Advocacy

Debunking myths of non-verbal autism

Diagnosis Disruption: Debunking the Myths of Non-verbal Autism

Autistic individuals are the true autism experts. Matthew Lager’s TASH Talk debunking the myths of non-verbal autism is a must read for anyone who has an autistic child or works with autistic individuals. Matthew uses a letterboard and keyboard to spell to communicate. He prepared this presentation for the 2016 TASH conference with his mother…

Open Letter to ASHA by Elizabeth Vosseller

To the Board of Directors: I am writing to you to ask that you withdraw the proposals from the Ad Hoc committee on FC and RPM.  The members of this committee have a longstanding public record of trying to discredit the use of FC, RPM and other forms of typing or spelling as a form…

Open letter to ASHA from Emma Budway & Benjamin McGann

Emma: My name is Emma Budway, Ben: and I am Benjamin McGann and we both use spelling to communicate. Emma: The majority of my and Benjamin’s childhood was spent in countless therapies and special education. Ben: Each claiming to get through to the autistic child and teach him or her to be normal, or at…

Open Letter to ASHA from The I&I Guys

Re: [TIME SENSITIVE] ASHA Policy Statement on RPM My name is Thomas Pruyn and I am a nonspeaking autistic who uses spelling to communicate. I am Ryan McMahon and I am a nonspeaking autistic who uses spelling to communicate. Like many other nonspeaking autistics, I, Ian Nordling, have found my voice by spelling on a…

A Myth of Giant Proportions

When I first started working at Growing Kids, I worked with students who were brand new to Spelling to Communicate, as well as some who started with Elizabeth beforehand. Over that time, skills began to build, goals were being met, and fluency was increasing. For the students and for myself, as well! Doing a regular,…

Tribe and UVA Part 2: Social Connections and Friendship

There are many reasons why I love being so involved with Tribe, but the UVa-Tribe exchanges are at the top. As a UVa alum, a friend of Vikram (who teaches the course), and as an educator at GKTC, it’s truly the case of my worlds colliding, and it’s the best thing ever. GKTC Tribe and…

DEEJ The Movie: Inclusion shouldn’t be a lottery

What a spectacular night at the Atlas Theater in Washington DC for the screening of Deej! Deej is the must-see documentary about DJ Savarese, a nonspeaking autistic and his journey to be included as a college student. The film is powerful and a story that we hope will become common for all of our students….

Letterboards, not just life changing.. life saving

I am so excited to introduce Diane Belnavis and Brent Sullivan as guest bloggers!  We formed an instant friendship when I met Brent, Diane and Dylan at the TASH Conference in Portland Oregon in November 2015. They have one of the most beautiful stories I have ever heard and it keeps getting better and better…

Silencing the Silent

Huan Vuong started advocating for communication and education rights for himself and other nonspeaking individuals as soon as he got on the letterboards. This was his second year presenting at the TASH conference. Due to Huan’s strong advocacy, his school system has recently responded to his requests to meet his communication needs and will provide…

The Value of Communication

Last week we promised more presentations by our students at the 2016 TASH Conference in St. Louis.  Ian Nordling is our next self advocate presenting his thoughts on the importance of communication in his TASH Talk.  Ian has been spelling on the letterboards and keyboards for over 2 years and is now beginning to type…

Stop making assumptions of Ignorance – TASH 2016

This year, four of Growing Kids’ nonspeaking or unreliably speaking clients presented at the TASH 2016 conference in St. Louis! Each of our students gave a TASH Talk (in the style of a TED Talk) and participated together for a panel discussion on inclusion. We will be sharing their presentations with you over the next…